Monday, August 27, 2012
Friday, August 24, 2012
Wednesday, August 22, 2012
Tuesday, August 21, 2012
Monday, August 20, 2012
Thursday, August 16, 2012
NDA Conference
I was in Boston this weekend for the 2nd International Norrie Disease Association conference. I am on the NDA board and I have to say we put on a great conference!
I am so thankful that I have a community of parents, men with Norrie Disease, and siblings to be a part of. I learn so much from these people!
Dawn Pollick and I met at the first conference and I think we've talked every day since. She has a son that is 3 so our experiences are very similar. Dawn and I joked all weekend that it was our anniversary and that we were soul mates.
We will be posting all the conference seminars on http://www.norriedisease.org. They should be posted in the next several weeks. In the meantime, another board member has several blog posts about the conference. There are four in all.
http://change-promise.blogspot.com/2012/08/an-nda-primer-and-convergence.html?m=1
Sent from my iPhone
I am so thankful that I have a community of parents, men with Norrie Disease, and siblings to be a part of. I learn so much from these people!
Dawn Pollick and I met at the first conference and I think we've talked every day since. She has a son that is 3 so our experiences are very similar. Dawn and I joked all weekend that it was our anniversary and that we were soul mates.
We will be posting all the conference seminars on http://www.norriedisease.org. They should be posted in the next several weeks. In the meantime, another board member has several blog posts about the conference. There are four in all.
http://change-promise.blogspot.com/2012/08/an-nda-primer-and-convergence.html?m=1
Sent from my iPhone
Tuesday, August 14, 2012
Monday, August 13, 2012
Wednesday, August 8, 2012
Tuesday, August 7, 2012
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